Monday, August 5, 2013

More Answers From John Chubb, New Independent Schools Association President - Independent Schools, Common Perspectives - Education Week

More Answers From John Chubb, New Independent Schools Association President - Independent Schools, Common Perspectives - Education Week

More Answers From John Chubb, New Independent Schools Association President

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I recently had an opportunity to speak directly to John Chubb, who earlier this month became president of the National Association of Independent Schools (NAIS). Prior to his starting the job, I had posted an "Open Letter" to John in this space, which he graciously answered. He went further still, offering to respond here to some direct questions. I'm extremely grateful to John for his thoughtful, thorough responses and for his time just as he is undertaking this new leadership role. The first part of this interviewappeared here on Monday, July 29.
QUESTION: As our society becomes more stratified along socioeconomic lines, what case can you make for independent schools as being a contributing part of American education rather than a privileged drain on the system as a whole? How can independent schools really prove their worth as members of the education community?
JOHN: Having spent most of my career in public school reform, I would not have joined NAIS had I not believed that independent schools have a major role to play in American education writ large. I have argued for a long time (over 25 years--whew!) that independent schools have important lessons to teach all schools. I used independent schools as exemplars as I researched and wrote about the benefits of autonomy. Charter schools were conceived applying the principles of independent schools to public education. Today 2 million students attend 5,000 charter schools. Without the examples of independent and other private schools, charter schools would never have been authorized.
Today, the nation is looking for the schools of the future, the schools that will help students thrive in the 21st century that is already well upon us, the schools that will enable students to learn through technology and traditional means alike, the schools that may operate according to new business models. The freedom that has enabled independent schools to succeed for so long should enable independent schools to be leaders in the development of new school models. We have no monopoly on good ideas, and we must pay close attention to innovations in every sector. But independent schools are better positioned than any to help point all of America's schools in promising directions.
This role will be played more effectively if independent schools are able to serve student populations that look more like America's public schools. Independent schools are ready serve remarkably diverse populations racially and ethnically. But we are less diverse by far socio-economically. This is inevitable being dependent on tuition. Independent schools already have substantial portions of their students on financial aid. It may not be possible to advance socio-economic diversity much further. But as we look to new school and business models, I think it important that we try to serve as representative student population as possible. It is good for our students. It enhances the value that we can add to American education both directly and as a possible model for others.
QUESTION: When you walk into a school for the first time, what are some of the things you look for right away? Why these?
JOHN: I look immediately at the students. Are they engaged, are they thinking, are they being challenged and responding? Our schools exist for our students, it's that simple. If students are not learning, nothing else matters. I like spending time in schools because I love teaching myself. The best part of my work over the last 20 or so years has been working with principals and teachers, seeing what they are doing to help students and occasionally contributing an idea of my own. I've had the privilege of watching some amazing educators in action. I'm in awe of inner city principals and teachers who I've watched bring hope to students for whom there was little or none. Inspired students required no special software or technology, no fancy physical plant, no particular curriculum.
One of the things that I admire most about independent schools is the remarkable range of approaches that work. In May I visited three independent schools on the north side of Chicago, one large, well-resourced, longstanding, and dazzling in the sciences, another tiny, scrappy, inhabiting a century-old parochial school, exalting the arts, and yet another recently founded, modestly priced and exuding enthusiasm for teaching and learning. In each school students were engaged, excited about whatever they were doing. The schools could not have been more different in their physical attributes or in their pedagogy, but for the students the experience was the same--learning, really learning.
QUESTION: Would you be willing to share anything about your or your family's own educational experiences?
JOHN: One story. I have noted before that my wife and I have six children. They have attended every type of school--public, charter, independent, and Catholic. We've experienced personally what we each happen to believe professionally (my wife is a former principal), that different schools are right for different students, and families ought to have the right to choose. We have tried to find the schools that will serve our very different children best. When the oldest was in elementary school--a public school, to remain nameless--he struggled to read and to manage ADHD, with which he was eventually diagnosed. By fifth grade he was a couple years behind in reading with little hope in sight. We sought another school for him, but he was so far behind that no one wanted to take the risk of failing him further.
But one independent school stepped up. The head offered us a deal. Have our son repeat fifth grade, and he would be admitted. The school provided no special services--though it would have. It provided a traditional, highly scaffolded curriculum, it taught study skills, it was highly structured day by day, hour by hour. More than anything it taught our son how to be a student. In one year's time he improved his core reading and math skills dramatically. His standardized test scores rose to age-appropriate levels. Sadly, we had to move from the city after that remarkable year. At his next school, our son tested into the seventh grade and was placed back where he belonged.
This transformation might have happened in any school--but it didn't. It happened in an independent school. I like to think of myself as a researcher, but I must confess that my passion for independent schools owes much to what one school did for my son.

How Teaming on School Choice Helps Rand Paul and Lamar Alexander - Politics K-12 - Education Week

How Teaming on School Choice Helps Rand Paul and Lamar Alexander - Politics K-12 - Education Week

How Teaming on School Choice Helps Rand Paul and Lamar Alexander

Washington
At first glance, GOP Senators Rand Paul and Lamar Alexander might seem like a bit of an odd couple. Although staunchly conservative, Alexander, of Tennessee, is often, ultimately, a dealmaker (witness his recent role in helping to broker a deal with Democrats on student loan interest rates, which ultimately got the support of nearly every Republican in the Senate).
On the other hand, Paul, of Kentucky, is a tea party superhero with a mixed record on compromise. Back in the fall of 2011, Paul used procedural maneuvers to gum up the works on a markup of bipartisan legislation to rewrite the Elementary and Secondary Education Act. He felt that negotiators hadn't included conservatives in their discussions of the measure. And he said the bill, which Alexander very reluctantly supported, went too far in maintaining the federal role in K-12.
Flash forward nearly two years, though, and it's clear Paul and Alexander have become buddies on a K-12 issue that unites most Republicans: school choice. And it's a political win for pretty much everyone—maybe even some folks who oppose vouchers. (More on that below).
Earlier this year, the two teamed up on a budget amendment that would have allowed Title I dollars to follow students to the school of their choice, even a private school. And more recently, Paul cosponsored Alexander's legislation to revamp the ESEA law, which would allow Title I money to follow students to charters and public schools, but not private schools.
How does it help Paul? He's considered a potential GOP presidential contender, and it's important for folks to see that he has expertise on key "kitchen table" issues, like education. Associating himself with Alexander, the Republicans' main man in the Senate on K-12, is smart politics.
For his part, Alexander is giving Paul plenty of credit for his efforts, including at a round-table discussion on choice up on Capitol Hill today featuring District of Columbia public school activists, parents, and students.
"Rand attracts a lot of attention wherever he goes these days, and I'm glad he is attracting attention on charter schools and school choice," said Alexander, who served as the U.S Secretary of Education. "Rand has emerged as our most effective advocate for freedom for teachers." (Remember that quote, you may see it again on the future website of Rand Paul for America, sometime in 2016.)
And Paul isn't alone here: Other up-and-coming GOP lawmakers are trying to grab the conservative mantle on education redesign generally, and school choice specifically. U.S. Rep. Eric Cantor, R-Va., the House Majority Leader, helped push through an amendment to the House GOP's ESEA bill that would allow Title I dollars to follow children to public schools, including charters (an idea that Alexander and Paul had already championed over on the Senate side). And another potential GOP 2016 contender, Rep. Paul Ryan of Wisconsin, recently met with a cadre of education groups to discuss K-12 funding issues, including Title I portability.
(It's worth pointing out that Title I portability was a key part of Gov. Mitt Romney's presidential platform—and it didn't land him in the White House.)
How does it help Alexander? Paul is a tea party rock star, and Alexander is facing potential tea party opposition in his home state (more in this Chattanooga Times Press story). It certainly doesn't hurt Alexander to show that Paul is happy to associate with him on education, an issue where the senator from Tennessee is seen as a party leader. (More here.)
How does it help the school choice movement? Who wouldn't want all this high-profile attention and new legislation?
How does it help some folks who aren't fans of school choice? Well, in terms of getting an actual deal on an reauthorization of ESEA, it's probably not so helpful. But, when it comes to ginning up opposition to the GOP on K-12 education, very few policies will get Democratic activists (particularly teachers' unions) more riled up than vouchers.

Superintendent's Blog: Sustaining governor's veto of House Bill 253 is best choice for Missouri

Superintendent's Blog: Sustaining governor's veto of House Bill 253 is best choice for Missouri

If you have turned on the TV lately, it's likely you've seen the 'Grow Missouri' advertising funded largely by Missouri billionaire Rex Sinquefield, who has reportedly donated close to $2.5 million through various political organizations in an effort to influence Missouri lawmakers. The commercials present state legislation known as House Bill 253 as a positive for Missouri that will grow jobs and help business. Unfortunately, this well-financed advertising campaign is not sharing the enormously negative impact of this legislation or the truth about this anticipated job growth.

Gov. Jay Nixon vetoed this bill during June. Since then, special-interest groups have worked to influence our state senators and representatives, urging them to override the governor's veto. To counter this campaign, the governor is hosting regional meetings across the state, including one in our school district on Tuesday, Aug. 6, beginning at 6:30 p.m. at the Stansberry Leadership Center, 301 NE Tudor Road

Gov. Nixon visits Nodaway County Senior Center to discuss his veto of a $200 million sales tax increase on Missourians who need prescription drugs

Gov. Nixon visits Nodaway County Senior Center to discuss his veto of a $200 million sales tax increase on Missourians who need prescription drugs

Gov. Nixon visits Nodaway County Senior Center to discuss his veto of a $200 million sales tax increase on Missourians who need prescription drugs

MARYVILLE, Mo. - Gov. Jay Nixon today visited the Nodaway County Senior Center to discuss House Bill 253, which would eliminate the current sales tax exemption on prescription drugs and result in an estimated tax increase of $200 million annually. The Governor vetoed House Bill 253 in June.
While speaking at the Nodaway County Senior Center, Gov. Nixon said the $200 million tax increase in House Bill 253 would make it harder for families to afford the medications they need to manage chronic conditions or treat an illness.
"The tax increase on prescription drugs in House Bill 253 would hit older Missourians on fixed incomes especially hard," Gov. Nixon said. "The out-of-pocket costs for prescription drugs already put a strain on many Missourians' budgets - and House Bill 253 would make prescription medication even more expensive. Now is not the time to reach further into the pockets of Missouri families and seniors and make it harder for them to make ends meet."
Since 1979, Missouri law has exempted prescription drug costs and co-pays from state sales tax.  Language in Section 144.030 of House Bill 253 would repeal this exemption, resulting in an estimated $200 million tax increase on Missourians who take prescription medication.  Because local jurisdictions follow state laws regarding exemptions, House Bill 253 would make prescription drugs subject to local sales taxes as well, resulting in a new tax of up to 10 percent in some communities.
The Governor vetoed House Bill 253 earlier this summer, but some members of the Missouri General Assembly have expressed their intent to attempt an override at the annual veto session this September.
Last month, AARP Missouri applauded Gov. Nixon's veto of House Bill 253 and urged the legislature to sustain it. "Preventing the taxation of prescription drugs, as instituted by this bill, is critical to AARP Missouri's 750,000 members," said AARP Advocacy Director Norma Collins. "This tax increase would be endured disproportionately by seniors, many suffering from cancer, heart disease and other life-threatening illnesses. Prescription drugs costs can exceed thousands of dollars per month-adding taxes to that number is especially burdensome for those living on fixed incomes."
In a September 2011 report, the State Auditor recognized that Missouri has the seventh-lowest state taxes as a percentage of personal income.  In 2012, the Federation of Tax Administrators ranked Missouri the fifth-lowest in per capita state taxes in the country, representing a lower tax burden than all of our surrounding states.  Moreover, a 2012 report by Ernst & Young and the Council on State Taxation ranked Missouri's effective business tax rate as the eighth-lowest in the country. 
"Over the past five years, we've held the line on taxes and kept Missouri a low-tax state. I intend to keep it that way," Gov. Nixon said. "This legislation is a tax hike that folks, especially older Missourians, don't deserve and can't afford."
Read Gov. Nixon's full veto message of House Bill 253 here.

Sunday, August 4, 2013

Jake's SSI

We had a hearing before a judge and he denied Jake’s SSI.  Below is part of his report.

The claimant has the following severe impairments: autistic disorder, Asperger syndrome, attention deficit hyperactivity disorder.

Per report, the claimant was, at various points in his childhood, diagnosed with pervasive developmental disorder, Asperger syndrome, and autistic disorder.

In early 2009, Tracy Orchester conducted an EXTENSIVE psychological evaluation and diagnosed him with autistic disorder and attention deficit hyperactivity disorder.  She spent many hours with and came to know him.

The claimant was referred to Susan Barngrover, Ph.D., who conducted a FIFTEEN MINUTE examination of his mental status and ability to manage funds.  Based on the claimant’s performance of relatively high functioning, Dr. Barngrover’s diagnostic impression was that the claimant had “long-standing Asperger rather than full blown autism”.  This despite the fact that Dr. Orchester’s report stated that it might appear that Jake has Asperger syndrome, but in fact he has autism.  His PCP stated in his report that the claimant has full syndrome of autism.  Children’s Mercy also conducted an evaluation and found that he did not have Asperger’s Syndrome, but in fact was autistic.  The only person that concluded that he had Asperger’s Syndrome was the person that only spent FIFTEEN MINUTES with him. 

Throughout the hearing, the claimant gave thoughtful, well-considered responses and testimony.  The claimant did not display any discernible lack of social graces.  On the contrary, the claimant tended to demonstrate better than average social poise and communicative skills.  The claimant’s testimony also appeared to be exceptionally straightforward, candid, and unexaggerated. 

Dr. Orchester emphasized that she could “not make any kind of evaluation off his current abilities or limitations.”  Based on notes that she took in 2009, Dr. Orchester opined that the claimant, when he was 15 years old had marked limitations with interacting with other people and with performing at a reasonable pace and moderate limitations in handling simple instructions and making simple work-related decisions. 

The Vineland II scores were quite low.  However, the Vineland scale does not involve the testing of the claimant, but is based upon the subjective responses of claimant’s parents.  Dr. Barngrover’s diagnostic impression and the claimant’s responsive testimony demonstrated a much higher level of social functioning. 

The vocational expert testified that given all of these factors the individual would be able to perform the requirements of representative occupations such as:  stubber of which about 1,800 jobs exist in Missouri and library age of which about 1,000 jobs exist in Missouri. 

Sherri R. Tucker
Cofounder and President Lee's Summit Autism Support Group
Cofounder MOAFAA (Missouri Advocates for Families Affected by Autism)
“In these days, it is doubtful that any child may reasonably be expected to succeed in life if he is denied the opportunity of an education.”
-Brown v. Board of Education, 347 U.S. 483 (1954)
“It is often easier to become outraged by injustice half a world away than by oppression and discrimination half a block from home.”― Carl T. Rowan


Risk factors for bullying among children with autism ... [Autism. 2013] - PubMed - NCBI

Risk factors for bullying among children with autism ... [Autism. 2013] - PubMed - NCBI

Risk factors for bullying among children with autism spectrum disorders.

Source

1Johns Hopkins Bloomberg School of Public Health, USA.

Abstract

Although children with disabilities have been found to be at an increased risk of bullying, there are limited studies investigating predictors of bullying involvement in children with autism spectrum disorders. The current study presents findings from 1221 parents of children diagnosed with autism spectrum disorder who were selected from a national web-based registry. Parents completed a survey dedicated to the school and bullying experiences of their child, and multivariate logistic regression analyses were conducted to identify child and school risk factors for involvement as victim, bully, or bully-victim. Additional analyses examined the risk of bullying involvement based on the amount of time spent in general education classrooms. Children diagnosed with Asperger's disorder, attending a public school or a school with a general education population, were at the greatest risk of being victimized in the past month. Children with comorbid conditions and a high level of autistic traits were the most likely to be victims, bullies, and bully-victims. Finally, children in full inclusion classrooms were more likely to be victimized than those who spend the majority of their time in special education settin

Autism as a death sentence - LA Daily News

Autism as a death sentence - LA Daily News

By Jonathan Dobrer
Should Paul Corby be allowed to die because he has autism? This is the simple question before the doctors at University of Pennsylvania Hospital. Their answer was: Yes. He does not warrant being saved by a heart transplant.

Let me disclose at the outset that I am not an objective reporter here. I worked with autistic children in the early 60s, I have a grandson with Asperger's Syndrome and my stepbrother lived a good and full life for nearly a decade and a half following a heart transplant. I take this case and the larger issues very personally.

While it is true that over 300 people die each year waiting for a heart transplant, Paul's autism is keeping him from even being wait-listed. Now to be fair (which I plan on being for a little while longer) heart transplants are not easy and patients do need to participate in their rehabilitation and ongoing care. Routinely people with major psychiatric or medical issues are turned down -- as are substance abusers. Since Corby has no other medical conditions and the substances he is on consist of 19 medicines prescribed to keep him alive, why he is being declined is
not clear, other than for his autism.


A spokeswoman for the hospital said, "The physicians involved believe that any discussion of the specifics of his case would be most unkind to him and therefore will not comment."

This is a phrase of such cruel and ironic bureaucrat-ese that it defies parody. Disclosing the reasons for allowing him to die would be "unkind" but allowing him to die is, well, what: Kindness itself?

Yes, Paul is quirky and geeky. He plays video games, has written one self-published novel and is working on another. He seems to have a mental and intellectual quality of life worthy of continuing. As a person with autism, he has developmental issues and is not always socially appropriate, according to our normal rules. None of his behaviors seems to warrant the death penalty, which is exactly what the University of Pennsylvania Hospital is imposing by its refusal to treat.

There is, of course, a larger social issue here. Who is worthy of living and dying? Do we "waste" medical services when they are given to people who are different by dint of some handicap or developmental issue? Do we want to rule out autism spectrum people and lose a potential Mozart, Einstein, probably Thomas Jefferson and certainly Temple Grandin? Do we want to have real "death panels" and come up with intellectual and emotional criteria for who shall live and who shall die? Do we want to take the chance of passive death panels that say your life is not worth saving becoming active death panels as happened when the Eugenics Movement of the 1920s devolved under the Nazis into the extermination of those not considered normal?

There are no guarantees with heart transplants. Some will survive surgery and go on to good lives, as my stepbrother did. Some will return to self-destructive life-styles. Some will be bad people and others wonderful and creative contributors to society. We have neither the tools nor the right to try to guess at the outcome of any individual life.

I hope the hospital finds that it, in the end, has a heart. And I mean this in both senses.